Living with uncertainty
Find tips and resources to help you and your loved ones cope with the uncertainties of living with cancer.
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Facing unknowns with cancer
Many people living with cancer may feel a loss of their normal sense of control and knowing what will come next. It is also common for people living with cancer to feel very worried (anxiety) before, during, or after cancer scans (sometimes called “scanxiety”).
It’s normal to feel this way when living with cancer. Whether you’re waiting for test results, starting a new treatment, or just managing day-to-day life after a cancer diagnosis, there are resources for you and things you can do to help you feel more in control.
Care team conversations
If you’re feeling anxious about a cancer-related scan, you can ask your care team these questions about your scan:
- Why is this scan being done?
- How can I prepare for this scan?
- When and how will I get my results?
- What are the next steps after I get my scan results?
- Who should I talk to if I have questions about my scan results?
- Where can I get support if I’m having anxiety?
How do I cope with uncertainty?
Here are a few actions you can take to help you find a little more comfort and control while living with the unknowns of cancer:
Take an active role in your treatment
- Ask your cancer care team for advice. They may have suggestions (like breathing exercises) and be able to recommend more resources or professionals to help you cope
- Know when to expect test results. Ask your care team when and how you’ll get your test results, including any steps that you may need to take
- Find out what your results may mean for you so you know how to respond when you receive them
- Talk about the next steps before ending each conversation with your care team. Make sure you understand and feel comfortable about what will happen next
Find mental and emotional support
- Join a support group. Ask your care team or hospital social worker if there are any support groups you can join. You can also visit resources, such as the National Cancer Institute’s Support Group Search Tool, to find people to talk to
- Talk with a counselor, spiritual leader, or other professional that can help you cope with the unknowns of living with cancer
Have compassion for yourself
- Find your inner calm through meditation, moments of quiet, prayer, reflection, or taking deep breaths. You can also use mobile apps to help you relax, such as music, podcasts, or meditation apps
- Surround yourself with people who reassure you. They can help you feel peace, support, and comfort
- Remind yourself what matters to you. One way to do this is using a gratitude journal each day to write a list of things that give your life meaning and purpose
- Enjoy healthy comfort meals, especially with friends or family who make you happy
- Try to avoid situations or people who make you feel anxious. This can help you feel calmer and more peaceful
Dealing with the uncertainties of cancer can be difficult, but you’re not alone. Keep making your way forward one step at a time, and remember that adapting to your “new normal” takes time.
Where can I find more cancer support?
Access resources that may help you during cancer treatment, including how to find financial support, local childcare, transportation services, and other important resources.
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